Resources for Patients

The following was posted on the BHIC Blog.

Helping Patients Understand Their Medical Treatment
http://bit.ly/i52SZS
By Sandra G. Boodman
March 1,  2011
“Kaiser Health News in collaboration with The Washington Post
An elderly woman sent home from the hospital develops a life-threatening infection because she doesn’t understand the warning signs listed in the discharge instructions. A man flummoxed by an intake form in a doctor’s office reflexively writes “no” to every question because he doesn’t understand what is being asked. A young mother pours a drug that is supposed to be taken by mouth into her baby’s ear, perforating the eardrum. And a man in his 70s preparing for his first colonoscopy uses a suppository as directed, but without first removing it from the foil packet.
Each of these examples provided by health-care workers or patient advocates illustrates one of the most pervasive and under-recognized problems in medicine: Americans’ alarmingly low levels of health literacy — the ability to obtain, understand and use health information.”

Well Spouse Association
http://www.wellspouse.org/
“When one is sick, two need help”
The Well spouse Association provides support for the caregiving spouse or partner of chronically ill or injured individuals. They provide services to all – and are not disease specific. WSA provides peer-to-peer support, one-on-one mentoring, round-robin letter writing, and an internet forum for discussions on best practices, personal issues, fiscal challenges and support. They produce a quarterly newsletter by and for spousal caregivers, as well as a bi-weekly e-newsletter.                                                      [IPNRC eNotes #133]

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